Tuesday, April 15, 2014

Month 7: part2

Well, it wasn't that bad getting a PICC line put in. Not my favorite thing to do nor would I like to do it again, but it wasn't horrible. I think it was a little more painful than people told me cause my body wasn't responding very well to the procedure. The woman doing it had to numb me twice cause the first time I didn't go numb, and felt putting it in. Then my vein wouldn't take the line and she had to find another. I was pretty sore, to say the least, the rest of the day and a good bit today. But it's done! And it's in! And I'm okay! Jesus gave me a lot of peace. 

So blessed that my mom, husband and best friend A were there to support me and encourage me :) 

So, right after it was done the three of them walked up to me and gave me a funny face. Cause between the procedure being done and them taking 7 steps over to the bed I had formed a hive under my left eye. Just one! Didn't itch or anything. Just a random white bump on my face haha! The nurse wasn't concerned because it wasn't near my PICC line, and started getting smaller as fast as it popped up. Probably resulted from all stress I had built up. The nurse said, "You're body is kinda weird, but you're cute." 

God hand picked that nurse for me. She knew the severity of Lyme Disease. She didn't have it, but watched someone very close to her suffer and die from it. So very hard and sad to hear her story. 

The nurse came today to teach me how to give myself the treatment and such. I was not looking forward to this, but so ready to start feeling better. I took quite a few taurine before hand. It wasn't bad at all. Actually, totally easy. She comes again tomorrow to make sure I understand everything and am able to do it in my own the rest of the week. One day down! 

I'm still in shock it had to come to this and take this long to get proper treatment. I'm so thankful for God's peace. "And the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus." (Phil 4:7) It's God's peace that's getting me through. 

Energy Expelled: My arm with the line is SO sore now. Even more so than before. My hands hurt. Headache. My neck and back really hurt. Legs are so uncomfortable and achy. Okay IV, you need to work! Ready to walk out in remission. 

~ "But the Lord stood with me and strengthened me." 2 Tim 4:17

Thursday, April 10, 2014

7th Inning Stretch

Oh boy! Am I being stretched these past couple weeks. When I went and saw my Doctor, the end of April, he informed me I need a PICC line. It was kinda a commical appointment, in a weird way. Right away when I walked in the room Dr. N started trailing off about how he's been thinking about me a lot. He then started saying how he might put me on a PICC line and need cocktail treatments (funny Lyme brain story: I thought he was talking about alcohol and I got excited because I've had one drink since treatment started. But then I realized he was talking about IV treatments. I could really go for a hard cider ;). He stopped after a bit and said, "Oh, I have not even asked how the past two months have been. I bet not well since I've thought about you a lot... But how's it been?" I then explained to him how the past month has been hell. He did some tests and came back saying I need a PICC line. 

He told me I remind him of the main girl from "Under Our Skin", the swimming girl. I asked if it was a compliment and he said she's pretty and had her 15 minutes  of fame.... Haha! Well, that's great!

I thought I understood the headache I was about to receive trying to get a PICC after Dr.N rambled and ranted for about 20 min on how to get it, but I was poorly mistaken.  I underestimated the size of the headache. In the past week and a half I have dealt with my insurance company, talking back and forth with my Doctor and a company to send me my medication, the hospital where I'll get the PICC, my insurance company, a home nurse company and my doctor office. At least a handful of times each. And they weren't short conversations either. 

Without saying, Trying to get this PICC line has been such a headache. Getting into the hospital to have it done, seeing what/if my insurance will cover anything (barely any), dealing with large amounts of paperwork, relating information from group A to group B and A to C and D... It's crazy. And to be honest, I don't understand most of this stuff. Insurance companies, and how to pay 4 different groups, and when to pay them, and processing so much information. Part of Lyme Disease is intense anxiety- I think I have that symptom down. But not really. 

At first I was totaling stressing trying to talk to these places, especially my insurance company. I just wanted to revert every conversation to Tanner. But he wasn't able to take every conversation. He has a job where they want him to work. So I had to figure it out on my own. It was trial by error. I actually feel kinda empowered now figuring all this stuff out. I mean, I feel bad for the people who have to talk to me with my Lyme brain, but I'm slowly figuring it out.

That's not to say they're not any less confusing or scary- but I'm getting my PICC line Monday so I must have done something right! 

I'll have a nurse come once a week to teach me how to do the IV meds. I guess I'll just add this to the list of medical things I've learned along the way. I feel like I should get an honorary doctorate degree soon! 

I was freaking out about the money of it all, having a PICC line, and doing the treatment myself each day. But then someone told me to picture PAC-MAN going through my veins and eating all the bacteria. I'm ready for some Lyme butt kicken and killin! Lyme Disease messed with the wrong chick! 

I am so disgusted at what Lyme has taken from so many people. The time, opportunities, jobs, adventures, relationships, money, education, and the list goes on.

These past couple weeks I've been so encouraged by the reminder that God is not gonna just restore what's been lost, but multiply it. Job 42:10 says, "After Job had prayed for his friends, the LORD restored his fortunes and gave him twice as much as he had before." That's the kind of God who loves me. One that doesn't just restore, but doubles it. That's hopeful! 

Energy Expelled: 4 hours to write. The usual sweaty hands, headache, dizziness, hand cramping, and my mom correcting my grammar. 

~ "Even though I don't know what Your plan is, I know You make beauty from these ashes"